Crohn's Quine Diary entries: 14th - 20th January 2013
Hi everyone, I hope you are all having a brilliant day. This post is my diary entry's from the 14th - 20th January 2013. If you would like to see my diary entry's as soon as post them, then follow my tumblr page Crohn's Quine Diary.
Monday 14th January
So my insomnia seems to reared it’s ugly head because I just could not get to sleep last night, it had been going so well, I am keeping everything crossed that it is a tiny blip and my sleeping pattern will go back to normal tonight.
Today the IBD nurse phoned me back this but I was unable to get to the phone in time because I was attached to my feed pump, I try phoning her striaght back but it just went to the answer machine. After I hung up the phone I listened to the message that she left, she said she apologized for not phoning me back on the Friday and that she was the only IBD nurse that was working this week so she would try phoning again at lunchtime but she didn’t, so I thought I should just phone and leave a message to say what exactly was wrong with me. She never did phone me back today.
Tuesday 15th January
Today was a snow day so I had to look after my little sister who has a learning disability because the place that she goes to during the day was shut due to the weather and both my parents had to go to work.
I managed to get a good night’s sleep last night thank goodness, because I don’t think I would have been able to cope looking after my sister if I didn’t. I fell a sleep at 3 o’clock in the afternoon and slept for 14 hours but I really did need it.
The IBD nurse phoned me back early to morning and I managed to get to the phone in time this time. I told her that I thought I was having a Crohn’s flare up because my stomach had been and sore and I was running a temperature, she agreed with what I thought but she would have to email my consultant to see what needed to be done.
So in the afternoon the IBD nurse phoned me back to tell me that my consultant wanted me to start steroids again. I have to admit I am pretty disappointed that I have to start taking steriods again, I haven’t had to take them in over 3 years but needs must I suppose.
Wednesday 16th January
Today was my first 40mg dose of steroids, I took it at 10am this morning and by late afternoon I thought I was doing alright because I hadn’t experienced any nasty side effect’s, but by the time evening came the side effects kicked in and I wasn’t exactly feeling by best.
Monday 14th January
So my insomnia seems to reared it’s ugly head because I just could not get to sleep last night, it had been going so well, I am keeping everything crossed that it is a tiny blip and my sleeping pattern will go back to normal tonight.
Today the IBD nurse phoned me back this but I was unable to get to the phone in time because I was attached to my feed pump, I try phoning her striaght back but it just went to the answer machine. After I hung up the phone I listened to the message that she left, she said she apologized for not phoning me back on the Friday and that she was the only IBD nurse that was working this week so she would try phoning again at lunchtime but she didn’t, so I thought I should just phone and leave a message to say what exactly was wrong with me. She never did phone me back today.
Tuesday 15th January
Today was a snow day so I had to look after my little sister who has a learning disability because the place that she goes to during the day was shut due to the weather and both my parents had to go to work.
I managed to get a good night’s sleep last night thank goodness, because I don’t think I would have been able to cope looking after my sister if I didn’t. I fell a sleep at 3 o’clock in the afternoon and slept for 14 hours but I really did need it.
The IBD nurse phoned me back early to morning and I managed to get to the phone in time this time. I told her that I thought I was having a Crohn’s flare up because my stomach had been and sore and I was running a temperature, she agreed with what I thought but she would have to email my consultant to see what needed to be done.
So in the afternoon the IBD nurse phoned me back to tell me that my consultant wanted me to start steroids again. I have to admit I am pretty disappointed that I have to start taking steriods again, I haven’t had to take them in over 3 years but needs must I suppose.
Wednesday 16th January
Today was my first 40mg dose of steroids, I took it at 10am this morning and by late afternoon I thought I was doing alright because I hadn’t experienced any nasty side effect’s, but by the time evening came the side effects kicked in and I wasn’t exactly feeling by best.
In the afternoon I was really happy and didn’t feel the slightest bit depressed but by nighttime I was feeling so depressed and I hadn’t felt that depressed in a very long time. I knew that the steriods could cause depression but I thought that because I was taking antidepressants I would not get that depressed but I was wrong, I am really not looking forward to the next few weeks.
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