Crohn's Quine Diary Roundup: 2nd - 8th September 2013
Hi everyone, I hope you have all had an amazing weekend. Today's post is my Crohn's Quine diary entries from the 24-30th June 2013. If you would like to see my diary entry's as soon as post them, then follow my Crohn's Quine Diary blog.
Tuesday 3rd September
Today has been another roasting day with the temperature being 23C (73F). To some that may not be that warm but to me it is far to warm I am a winter girl, I really hope it is cooler tomorrow because the heat makes me very grumpy.
It hasn't been that bad of a Crohn's day and I haven't choked myself today which is a good thing but the most likely reason I haven't choked myself is, I ate only my safe foods which is pasta, beef mince, tatties (potatoes), and a cake.
Myself and the family got some bad news this evening, my auntie has been admitted to hospital with what they think is a blood clot but this women is a tough cookie she has colitis and won the battle against lymphoma twice so I am sure she will be fine.
Wednesday 4th September
This morning I woke up feeling like I haven't slept even though I had 7 hours sleep, it must be due to the 7am starts all this week but thankfully today is not as warm out so that means the grumpy bitch has disappeared.
Today I decided to try food that wasn't my safe foods and it wasn't a good idea. I had one packed of Doritos crisps (chips) left in the cupboard so I decided to try and eat them, after I struggled to eat a few I finally choked on one. I will obviously just have to stick to my safe foods, the only thing I find with doing that is I don't get all the vitamins and minerals that I need but I suppose that is what the PEG feed is for.
Also today I have been really struggling with sickness, it's bad enough that Crohn's makes you feel sick but the added sickness due to time of month on top of that can make it unbearable. I have been taking my anti-sickness tablets but they have not been making any difference today.
Now finally on the good thing that happened today my auntie does not have a blot clot, woohoo :-) but she does have a lung infection. :-(
Thursday 5th September
Today has not been a good day, I have been feeling rough all day and it ruined my plans for this evening. I try really hard to not let my illness control my life but today it won, I really hope that this is just a small hiccup and it will only last for a couple of days.
I nearly had a full blown row with mum this afternoon because she told me that if we move house I wouldn't be able to burn candles which is so unfair. I don't want to give up my candles because they are one of the things that I enjoy and burning candles is something that a person with a chronic illness must be allowed to do, I know that it will sound stupid to those who don't suffer from poor health. She said that if I didn't like it I could find my own place, there is nothing that I would like to do more but my finances at the moment do not allow it.
Friday 6th September
Today I did absolutely nothing because I had a really rubbish night last night and hardly got any sleep plus today I have still been feeling crap. The most exciting thing that happened to me today was that my stoma (ostomy) bag decided to burst again, it wasn't until it burst that I realised that the stoma nurse never did phone me back last Friday. I phoned a week past Thursday and left a message because I wanted to know what I should do about the bursting ostomy bags and I also want to know how I go about getting 2 piece bags because my fellow IBD friends Amy and Charlotte say they are a great type of bag.
Also today I was looking online at some Halloween decoration's to cheer myself and before people say anything yes I know I am 25 and I am not a kid anymore but I just love celebrating any type of holiday. I managed to find this really cool lantern but it is quite expensive at just over £20.
It does look like it is worth the £20 though and I can make it the only Halloween decoration that I buy this year.
Saturday 7th September
Guess what I did today? That's right absolutely nothing, I didn't sleep at all last night so I think my insomnia has decided to come back again. Words can not describe how pissed off I am, I have had a great 3 weeks of proper nights sleep and now it has gone back to the way it was before.
I just realised that yesterday was 4 weeks since my oesophageal dilation and my diet is restricted again. These last few days I have been thinking is it worth while putting my body through the stress of a general anaesthetic and dilation for something that only stays open a couple of weeks. At the moment I don't think it is worth it but that might change in the next couple of weeks once the really bad hunger sets in.
Sunday 8th September
Today has just been the same as the last few days, in bed with a high temperature. I was thinking about phoning the doctor tomorrow but I am going to have to put that on hold because I am going to have to take the cat to the vet because she has hurt her leg.
I really need to get back on track with my fitness regime next week after doing nothing last week, everybody says to me that I should rest but if I did that every time Crohn's decided to act up I would always be in bed plus I need to get my body in good condition just in case I have to have an operation on my oesophagus.
I have had lots of blog post ideas over the weekend for my Crohn's and beauty blog so that will keep me busy for most of the week as well, I always like it when I have a good number of things to do it distracts me from my poor health.
Tuesday 3rd September
Today has been another roasting day with the temperature being 23C (73F). To some that may not be that warm but to me it is far to warm I am a winter girl, I really hope it is cooler tomorrow because the heat makes me very grumpy.
It hasn't been that bad of a Crohn's day and I haven't choked myself today which is a good thing but the most likely reason I haven't choked myself is, I ate only my safe foods which is pasta, beef mince, tatties (potatoes), and a cake.
Myself and the family got some bad news this evening, my auntie has been admitted to hospital with what they think is a blood clot but this women is a tough cookie she has colitis and won the battle against lymphoma twice so I am sure she will be fine.
Wednesday 4th September
This morning I woke up feeling like I haven't slept even though I had 7 hours sleep, it must be due to the 7am starts all this week but thankfully today is not as warm out so that means the grumpy bitch has disappeared.
Today I decided to try food that wasn't my safe foods and it wasn't a good idea. I had one packed of Doritos crisps (chips) left in the cupboard so I decided to try and eat them, after I struggled to eat a few I finally choked on one. I will obviously just have to stick to my safe foods, the only thing I find with doing that is I don't get all the vitamins and minerals that I need but I suppose that is what the PEG feed is for.
Also today I have been really struggling with sickness, it's bad enough that Crohn's makes you feel sick but the added sickness due to time of month on top of that can make it unbearable. I have been taking my anti-sickness tablets but they have not been making any difference today.
Now finally on the good thing that happened today my auntie does not have a blot clot, woohoo :-) but she does have a lung infection. :-(
Thursday 5th September
Today has not been a good day, I have been feeling rough all day and it ruined my plans for this evening. I try really hard to not let my illness control my life but today it won, I really hope that this is just a small hiccup and it will only last for a couple of days.
I nearly had a full blown row with mum this afternoon because she told me that if we move house I wouldn't be able to burn candles which is so unfair. I don't want to give up my candles because they are one of the things that I enjoy and burning candles is something that a person with a chronic illness must be allowed to do, I know that it will sound stupid to those who don't suffer from poor health. She said that if I didn't like it I could find my own place, there is nothing that I would like to do more but my finances at the moment do not allow it.
Friday 6th September
Today I did absolutely nothing because I had a really rubbish night last night and hardly got any sleep plus today I have still been feeling crap. The most exciting thing that happened to me today was that my stoma (ostomy) bag decided to burst again, it wasn't until it burst that I realised that the stoma nurse never did phone me back last Friday. I phoned a week past Thursday and left a message because I wanted to know what I should do about the bursting ostomy bags and I also want to know how I go about getting 2 piece bags because my fellow IBD friends Amy and Charlotte say they are a great type of bag.
Also today I was looking online at some Halloween decoration's to cheer myself and before people say anything yes I know I am 25 and I am not a kid anymore but I just love celebrating any type of holiday. I managed to find this really cool lantern but it is quite expensive at just over £20.
It does look like it is worth the £20 though and I can make it the only Halloween decoration that I buy this year.
Saturday 7th September
Guess what I did today? That's right absolutely nothing, I didn't sleep at all last night so I think my insomnia has decided to come back again. Words can not describe how pissed off I am, I have had a great 3 weeks of proper nights sleep and now it has gone back to the way it was before.
I just realised that yesterday was 4 weeks since my oesophageal dilation and my diet is restricted again. These last few days I have been thinking is it worth while putting my body through the stress of a general anaesthetic and dilation for something that only stays open a couple of weeks. At the moment I don't think it is worth it but that might change in the next couple of weeks once the really bad hunger sets in.
Sunday 8th September
Today has just been the same as the last few days, in bed with a high temperature. I was thinking about phoning the doctor tomorrow but I am going to have to put that on hold because I am going to have to take the cat to the vet because she has hurt her leg.
I really need to get back on track with my fitness regime next week after doing nothing last week, everybody says to me that I should rest but if I did that every time Crohn's decided to act up I would always be in bed plus I need to get my body in good condition just in case I have to have an operation on my oesophagus.
I have had lots of blog post ideas over the weekend for my Crohn's and beauty blog so that will keep me busy for most of the week as well, I always like it when I have a good number of things to do it distracts me from my poor health.
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