Crohn's Quine Diary Roundup: 23rd Sept - 6th October 2013
Hello everyone, I hope you all had an excellent weekend. As you may have noticed last Monday there was no Crohn's Quine diary roundup and that was due to me being away last weekend which made me fall behind on my diary posts, but now that I have finally caught up you should be seeing these blog posts every Monday. If you would like to see my diary entry's as soon as post them, then follow my Crohn's Quine Diary blog.
Tuesday 24th September
So I have had a crap couple of days regarding my health, the fistula is definitely leaking more and my pain medication is not strong enough some of the time. I think the time has come where I need to start those humria injections, which I am still not completely happy about but needs must I suppose plus there is nothing else to take at the moment apart from the humria.
I managed to get out of the house and go into town today which did me the world of good, even though I didn't have a successful shopping trip. The main reason I went into town was to get trousers for going away this weekend but unfortunately when you have bad bloating and an ostomy it makes it really difficult to find some, so that means it's legging's all the way for this weekend and fingers crossed it is not to cold.
Thursday 26th September
These last couple of days have been pretty much the same health wise accept now I also feel sick but a bit of good news is I phoned GI today and I have managed to score myself a GI clinic appointment for the 9th October, woohoo!!!!! Originally I was phoning GI to get stronger pain medication but I thought I would try my luck and see if there was any clinic appointments, I am sure I will be able to cope for another couple of weeks.
So I was really happy that I managed to get a clinic appointment so soon but my happiness didn't last very long because today I went to pick up my repeat prescription for dihydrocodeine from chemist to find that my doctor had refused to issue it. I was absolutely fuming how can they refuse to give somebody who has a crohn's flare, adhesions and fistula pain medication, especially when the pain meds you are on is not strong enough in the first place. So I phoned my GP practice, spoke to a doctor and told them that they had to refill the prescription because I could not get a GI appointment for 2 weeks, he agreed to issue it but told me that I should make a review appointment with my normal GP but I said that there was no point in making an appointment until I had been to the clinic because they are the specialists and if they find it difficult to treat me then how on earth is a GP going to manage.
Tomorrow I am London bound and I am not going to lie I am a bit worried about this trip just because of the way I am feeling but hopefully having fun will distracted me from all the issues that I am having.
And one more thing and I can't believe that I nearly forgot to write about it, is I slept a full seven hours straight last night. It is so wonderful to get a full nights sleep for once and I really hope the same happens again tonight.
Friday 27th September
Today is the day that I am London bound but of course my body has decided to be very naughty and I have develop a stupid f***ing cold, oh well I am not going to let it ruin my weekend.
I was pretty stressed out this afternoon because I decided to take a nap so that I had enough energy for night time but I ended up sleeping longer then I wanted to and of course I had to rush to get packed, have a shower and change my ileostomy. Thankfully I managed to get everything done though and I think I possibly set a new record for change stoma.
The flight to Gatwick was delayed so we didn't end up getting to the hotel at Gatwick airport until after 11pm but the main thing is I am here and I can't wait for the Paramore concert tomorrow night.
Saturday 28th September
So apart from a few nightmare's I got a decent nights sleep last night which I was pretty surprised about, with the hotel been right next to the airport I thought it would be noisy.
Basically this morning consisted of travelling because Gatwick airport is on the outskirts of London so that means you have to take the Gatwick express train to get into Victoria station. This time instead of getting a taxi to get to Westminster which is where the hotel is located we decided to try the underground, this was my very first time on the underground and it was not as confusing as what I thought it was going to be. The underground is definitely the best way to travel in London plus it only cost £8 for a ticket that lasted all day.
We got to the hotel too early this afternoon but they said they would keep our suitcases so that we could go and do things. My choice of thing to do was go to the Imperial War Museum because when we were down in May it was completely closed for renovations, they are still currently doing work on the museum so a number of things weren't there so I will have to go back once they have finished doing the renovations.
After spending a couple of hours in the museum it was time to go back to the hotel to check in, even though we had been in the museum for a little while I still had time to rest before the Paramore concert. I was really grateful for the rest because my leg joints where starting to play up.
So we left the hotel to head off to the Paramore concert at 5.45pm and it was great that we only had to get on one underground train because the Jubilee line took us straight from Westminster to Wemebly, I can't remember how long it took us to get there. We had decided not to be there for exactly 6 o'clock which was the time the doors opened so that meant when arrived we didn't have to stand in a queue.
The concert was excellent and Hayley Williams has the most amazing voice, it was just a shame that it went by so quick :-( but they did play for nearly 2 hours so you can't complain. The trip back from the arena to the hotel was pretty uneventful and when I got back all I did was take of my makeup and go straight to bed.
Sunday 29th September
So I woke up today feeling absolutely crap I think it is due to doing to much yesterday and the cold, flu viral thing that I have. People always say to me that I shouldn't do things if I am not feeling well but I was coming on this weekend trip come hell or high water.
So because I was feeling so rubbish we really didn't do that much today. We checked out of the hotel at 12pm because that is the time we had to be out by and headed to Victoria station, there is a few shops at the station so we had a look around them before getting on the Gatwick Express.
We arrived far to early at the airport and had to wait an hour before we could check in for our flight, I don't normally mind waiting but there was nothing to do. Once we had checked in and got through to departures I did my favourite thing, duty free shopping. Duty free was where I spend most of money on this trip and can you guess what I ended up buying? That's right more makeup as soon as this girl see discounted makeup I have to spend, spend, spend.
The flight home was much better then the one in May thankfully, last time we flew home from Gatwick we had to sit on the tarmac with the doors shut for half an hour. I hate it when you have to sit on a plane that isn't moving with doors shut because for some reason I start to feel really claustrophobic.
I arrived home after 9pm and decided to take some lemsip and head to straight bed because I was feeling so unwell, screw unpacking my suitcase it can be done tomorrow.
Sunday 6th October
So there really hasn't been much point in me writing everyday this week because everyday has been the same. So for the whole of this week I have been sick, at the beginning of the week I was sick with a cold, flu viral thing and then by the end of the week my Crohn's had flared up in my bowel, oesophgaus and mouth. I think the reason why my Crohn's flared up so badly is due to that virus thing I had, I am really hoping that it will settle down itself but if doesn't at least I have an appointment with the IBD nurse in Wednesday.
Also this week the cat had to go back to the vet because of her hip but this time they said that it might be her pelvis that is causing her the pain not the hip. When she was there the vet also found a lump in stomach and as soon as I heard that my heart sunk but thankfully they said that it is a fatty lump, it will need to be checked regularly for the rest of her life to make sure that it doesn't turn into something else.
The last few days I have been feeling really agitated and irritable, I am not sure why I feel this way maybe it is hormone's or maybe it is just due to all the crap I have had to deal with this week.
The good things that happened this week (and yes despite a shitty week I can still find good things) were I ordered 3 new Halloween decorations and Yankee Candles. A lot of people think that I am extremely weird for still decorating and celebrating but do I care what they think NO!!!
That's it for this weeks Crohn's Quine diary roundup so until my next post remember to....
Tuesday 24th September
So I have had a crap couple of days regarding my health, the fistula is definitely leaking more and my pain medication is not strong enough some of the time. I think the time has come where I need to start those humria injections, which I am still not completely happy about but needs must I suppose plus there is nothing else to take at the moment apart from the humria.
I managed to get out of the house and go into town today which did me the world of good, even though I didn't have a successful shopping trip. The main reason I went into town was to get trousers for going away this weekend but unfortunately when you have bad bloating and an ostomy it makes it really difficult to find some, so that means it's legging's all the way for this weekend and fingers crossed it is not to cold.
Thursday 26th September
These last couple of days have been pretty much the same health wise accept now I also feel sick but a bit of good news is I phoned GI today and I have managed to score myself a GI clinic appointment for the 9th October, woohoo!!!!! Originally I was phoning GI to get stronger pain medication but I thought I would try my luck and see if there was any clinic appointments, I am sure I will be able to cope for another couple of weeks.
So I was really happy that I managed to get a clinic appointment so soon but my happiness didn't last very long because today I went to pick up my repeat prescription for dihydrocodeine from chemist to find that my doctor had refused to issue it. I was absolutely fuming how can they refuse to give somebody who has a crohn's flare, adhesions and fistula pain medication, especially when the pain meds you are on is not strong enough in the first place. So I phoned my GP practice, spoke to a doctor and told them that they had to refill the prescription because I could not get a GI appointment for 2 weeks, he agreed to issue it but told me that I should make a review appointment with my normal GP but I said that there was no point in making an appointment until I had been to the clinic because they are the specialists and if they find it difficult to treat me then how on earth is a GP going to manage.
Tomorrow I am London bound and I am not going to lie I am a bit worried about this trip just because of the way I am feeling but hopefully having fun will distracted me from all the issues that I am having.
And one more thing and I can't believe that I nearly forgot to write about it, is I slept a full seven hours straight last night. It is so wonderful to get a full nights sleep for once and I really hope the same happens again tonight.
Friday 27th September
Today is the day that I am London bound but of course my body has decided to be very naughty and I have develop a stupid f***ing cold, oh well I am not going to let it ruin my weekend.
I was pretty stressed out this afternoon because I decided to take a nap so that I had enough energy for night time but I ended up sleeping longer then I wanted to and of course I had to rush to get packed, have a shower and change my ileostomy. Thankfully I managed to get everything done though and I think I possibly set a new record for change stoma.
The flight to Gatwick was delayed so we didn't end up getting to the hotel at Gatwick airport until after 11pm but the main thing is I am here and I can't wait for the Paramore concert tomorrow night.
Saturday 28th September
So apart from a few nightmare's I got a decent nights sleep last night which I was pretty surprised about, with the hotel been right next to the airport I thought it would be noisy.
Basically this morning consisted of travelling because Gatwick airport is on the outskirts of London so that means you have to take the Gatwick express train to get into Victoria station. This time instead of getting a taxi to get to Westminster which is where the hotel is located we decided to try the underground, this was my very first time on the underground and it was not as confusing as what I thought it was going to be. The underground is definitely the best way to travel in London plus it only cost £8 for a ticket that lasted all day.
We got to the hotel too early this afternoon but they said they would keep our suitcases so that we could go and do things. My choice of thing to do was go to the Imperial War Museum because when we were down in May it was completely closed for renovations, they are still currently doing work on the museum so a number of things weren't there so I will have to go back once they have finished doing the renovations.
After spending a couple of hours in the museum it was time to go back to the hotel to check in, even though we had been in the museum for a little while I still had time to rest before the Paramore concert. I was really grateful for the rest because my leg joints where starting to play up.
So we left the hotel to head off to the Paramore concert at 5.45pm and it was great that we only had to get on one underground train because the Jubilee line took us straight from Westminster to Wemebly, I can't remember how long it took us to get there. We had decided not to be there for exactly 6 o'clock which was the time the doors opened so that meant when arrived we didn't have to stand in a queue.
The concert was excellent and Hayley Williams has the most amazing voice, it was just a shame that it went by so quick :-( but they did play for nearly 2 hours so you can't complain. The trip back from the arena to the hotel was pretty uneventful and when I got back all I did was take of my makeup and go straight to bed.
Sunday 29th September
So I woke up today feeling absolutely crap I think it is due to doing to much yesterday and the cold, flu viral thing that I have. People always say to me that I shouldn't do things if I am not feeling well but I was coming on this weekend trip come hell or high water.
So because I was feeling so rubbish we really didn't do that much today. We checked out of the hotel at 12pm because that is the time we had to be out by and headed to Victoria station, there is a few shops at the station so we had a look around them before getting on the Gatwick Express.
We arrived far to early at the airport and had to wait an hour before we could check in for our flight, I don't normally mind waiting but there was nothing to do. Once we had checked in and got through to departures I did my favourite thing, duty free shopping. Duty free was where I spend most of money on this trip and can you guess what I ended up buying? That's right more makeup as soon as this girl see discounted makeup I have to spend, spend, spend.
The flight home was much better then the one in May thankfully, last time we flew home from Gatwick we had to sit on the tarmac with the doors shut for half an hour. I hate it when you have to sit on a plane that isn't moving with doors shut because for some reason I start to feel really claustrophobic.
I arrived home after 9pm and decided to take some lemsip and head to straight bed because I was feeling so unwell, screw unpacking my suitcase it can be done tomorrow.
Sunday 6th October
So there really hasn't been much point in me writing everyday this week because everyday has been the same. So for the whole of this week I have been sick, at the beginning of the week I was sick with a cold, flu viral thing and then by the end of the week my Crohn's had flared up in my bowel, oesophgaus and mouth. I think the reason why my Crohn's flared up so badly is due to that virus thing I had, I am really hoping that it will settle down itself but if doesn't at least I have an appointment with the IBD nurse in Wednesday.
Also this week the cat had to go back to the vet because of her hip but this time they said that it might be her pelvis that is causing her the pain not the hip. When she was there the vet also found a lump in stomach and as soon as I heard that my heart sunk but thankfully they said that it is a fatty lump, it will need to be checked regularly for the rest of her life to make sure that it doesn't turn into something else.
The last few days I have been feeling really agitated and irritable, I am not sure why I feel this way maybe it is hormone's or maybe it is just due to all the crap I have had to deal with this week.
The good things that happened this week (and yes despite a shitty week I can still find good things) were I ordered 3 new Halloween decorations and Yankee Candles. A lot of people think that I am extremely weird for still decorating and celebrating but do I care what they think NO!!!
That's it for this weeks Crohn's Quine diary roundup so until my next post remember to....
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