Crohn's Quine Diary entries: 1st - 7th October 2012
Hi everyone I hope you are all doing well. This post is my diary entry's from the 1st-7th
of October 2012. If you would like to see my diary entry's as soon as post
them, then follow my tumblr page Crohn's
Quine Diary.
2nd October 2012
Where to start, should start with the good stuff or the bad stuff? Seeing as it is blog about crohn’s I should proably start with my health issues.
So my health is slowly deteriorating, today my oesophageal stricture has become so much worse to the point that I can’t even speak anymore because everytime I start to speak I bring up saliva, I was planning to phone the IBD nurse today but I was unable to because I can’t speak so my mum has agree to do it for me tommorow.
Now onto the exciting thing that is happening in my life at the moment, I started my evening class last night. I am so so so pleased that I managed to go because during the day I thought my health issues were going to stop me from being able to go but it didn’t and I even managed to beat my anixety as well. The short course that I have decided to study is foundation photography at Gray’s School of Art, so we are learning about how to use SLR cameras and how to develop the photos, I can’t wait until next week because we are going to be using the darkrooms to develop some of the photos that we took this week.
3rd October 2012
Well today has been pretty much the same as every other day this week, get up, bring up loads of shit, put water through my PEG tube, then it’s time for bed, at the moment I am existing not living.
So my mum was able to phone the hospital for me and the decision that was made is - I don’t have to go into hospital at the moment and they will send out a letter with the date that they are going to do the Oesophageal dilation. The one slight problem with my GI consultant doing it is that the last time he tried to dilate it when it was this bad he couldn’t do it because the guide wire wouldn’t go passed the stricture and I then had to be referred to the x-ray department so they could do it under x-ray guidance. I’m keeping everything crossed that he will be able to dilate it.
So today I ordered my camera for my evening class today so hopefully it will be here on Friday, tommorow I will order the film and paper so I should be all set for my next class on Monday.
5th October 2012
Well all I have to say about my health is, it is still rubbish and I haven’t recieved the letter from the hospital yet but I did get my retro SLR in the post today and I already love it. Today I also bought my plane tickets to London for next year and I am super excited, so hurry up next year. I have always wanted to go to London but for the past few years my health has stopped me from being able to go but next year will be the year.
This weekend I really do not have much planned because my health is restricting me at the moment so I am going to have a Vampire Diaries dvd marathon and also I must remember to order my photographic paper and films.
Today I am grateful for….
7th October 2012
So my weekend has been exactly I like said it would be, I stayed in bed and watched DVD’s. My health is still getting worse, I am still bringing up all that stuff but now I am hardly going to the toilet, I feel the cold all the time, I have lost another 1/2 kg and my skin is becoming very dry. All I can do is keeping going with the thing’s that I am doing and hope that it will not be to long before I get my oesophageal dilation, tomorrow is my evening class again so at least I will have something enjoyable to do.
2nd October 2012
Where to start, should start with the good stuff or the bad stuff? Seeing as it is blog about crohn’s I should proably start with my health issues.
So my health is slowly deteriorating, today my oesophageal stricture has become so much worse to the point that I can’t even speak anymore because everytime I start to speak I bring up saliva, I was planning to phone the IBD nurse today but I was unable to because I can’t speak so my mum has agree to do it for me tommorow.
Now onto the exciting thing that is happening in my life at the moment, I started my evening class last night. I am so so so pleased that I managed to go because during the day I thought my health issues were going to stop me from being able to go but it didn’t and I even managed to beat my anixety as well. The short course that I have decided to study is foundation photography at Gray’s School of Art, so we are learning about how to use SLR cameras and how to develop the photos, I can’t wait until next week because we are going to be using the darkrooms to develop some of the photos that we took this week.
3rd October 2012
Well today has been pretty much the same as every other day this week, get up, bring up loads of shit, put water through my PEG tube, then it’s time for bed, at the moment I am existing not living.
So my mum was able to phone the hospital for me and the decision that was made is - I don’t have to go into hospital at the moment and they will send out a letter with the date that they are going to do the Oesophageal dilation. The one slight problem with my GI consultant doing it is that the last time he tried to dilate it when it was this bad he couldn’t do it because the guide wire wouldn’t go passed the stricture and I then had to be referred to the x-ray department so they could do it under x-ray guidance. I’m keeping everything crossed that he will be able to dilate it.
So today I ordered my camera for my evening class today so hopefully it will be here on Friday, tommorow I will order the film and paper so I should be all set for my next class on Monday.
5th October 2012
Well all I have to say about my health is, it is still rubbish and I haven’t recieved the letter from the hospital yet but I did get my retro SLR in the post today and I already love it. Today I also bought my plane tickets to London for next year and I am super excited, so hurry up next year. I have always wanted to go to London but for the past few years my health has stopped me from being able to go but next year will be the year.
This weekend I really do not have much planned because my health is restricting me at the moment so I am going to have a Vampire Diaries dvd marathon and also I must remember to order my photographic paper and films.
Today I am grateful for….
- Receiving my camera in the post
- Being able to find the energy to have a shower
7th October 2012
So my weekend has been exactly I like said it would be, I stayed in bed and watched DVD’s. My health is still getting worse, I am still bringing up all that stuff but now I am hardly going to the toilet, I feel the cold all the time, I have lost another 1/2 kg and my skin is becoming very dry. All I can do is keeping going with the thing’s that I am doing and hope that it will not be to long before I get my oesophageal dilation, tomorrow is my evening class again so at least I will have something enjoyable to do.
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