Crohn's Quine Diary Roundup: April 2014
Hello IBD family, I hope you are all doing well. Today I am back with a Crohn's Quine diary entry roundup. If you have previously read my blog you will remember that I use to do my Crohn's Quine diary entry roundup every week but I now decided to change it to monthly, so here is all the diary entries that I posted in the month of April.
Monday 7th April 2014
Words cannot describe how frustrated I am with my health at the moment. I can't remember if I wrote about this but over 5 weeks ago I surgery to try and fix the open surgical wound that I have had for 5 and a 1/2 years, everything was going great but now there is a hole and there is stuff coming draining out of it. I was really hoping that this time it would be fixed so that I didn't have to daily dressings anymore but that is not the case. I shouldn't really be that surprised though because how is a wound suppose to heal if the body is not getting enough nutrition.
So yesterday I started clearing out my bedroom because the new bedroom furniture should be here in the next 4 to 5 weeks. There might be one slight issue with the new furniture and that is the wardrobe space, I am going from 2 double wardrobes to one. When I was ordering the furniture I thought to myself I don't need 2 double wardrobes because I don't wear half the clothes that I have but when I was clearing one of the wardrobes I was unable to part with most of the clothes.
Wednesday 9th April 2014
So today was oesophageal dilation day and I was really looking forward to getting it done because I hadn't eaten any solid food for 3 months but procedure didn't go to plan. When I woke up in the recovery room I found that they had to put an I.V into my foot because the veins in my arms are completely shot but unfortunately there was worse news to come. The recovery nurse told me that I needed to get an urgent C.T scan done but she never told me the reason why I had to have it, so of course I start to panic. I am thinking to myself why do I need this scan? I have probably had this procedure done about 30 times in the past 5 years and not once have I needed to get a scan afterwards.
Three hours after I came back from the getting the dilation I still hadn't had the scan and nobody had told me what was going on, finally after four hours at just after 8pm two doctor's form the GI ward eventually told me what was going on. During the procedure the consultant radiologist thought that the oesophagus had torn during the dilation due to him over stretching it. Being told this made me panic even more and honestly I was really scared, I always knew that this was one of the risks of having a dilation but it is one of this things that will happen to you especially when you have had dialtions so many times before and nothing like this has ever gone wrong.
Due to it being so late in the evening I was told that I wouldn't be getting the scan today, it would have to be done the following morning and because of the complication they thought I had I was nil by mouth until they did the scan. Of course being nil by mouth meant that I couldn't take my anti anxiety medication so they had to give me half the standard dose of lorazepam, thankfully this medication helped calm me so fingers crossed I will be able to sleep.
Monday 7th April 2014
Words cannot describe how frustrated I am with my health at the moment. I can't remember if I wrote about this but over 5 weeks ago I surgery to try and fix the open surgical wound that I have had for 5 and a 1/2 years, everything was going great but now there is a hole and there is stuff coming draining out of it. I was really hoping that this time it would be fixed so that I didn't have to daily dressings anymore but that is not the case. I shouldn't really be that surprised though because how is a wound suppose to heal if the body is not getting enough nutrition.
So yesterday I started clearing out my bedroom because the new bedroom furniture should be here in the next 4 to 5 weeks. There might be one slight issue with the new furniture and that is the wardrobe space, I am going from 2 double wardrobes to one. When I was ordering the furniture I thought to myself I don't need 2 double wardrobes because I don't wear half the clothes that I have but when I was clearing one of the wardrobes I was unable to part with most of the clothes.
Wednesday 9th April 2014
So today was oesophageal dilation day and I was really looking forward to getting it done because I hadn't eaten any solid food for 3 months but procedure didn't go to plan. When I woke up in the recovery room I found that they had to put an I.V into my foot because the veins in my arms are completely shot but unfortunately there was worse news to come. The recovery nurse told me that I needed to get an urgent C.T scan done but she never told me the reason why I had to have it, so of course I start to panic. I am thinking to myself why do I need this scan? I have probably had this procedure done about 30 times in the past 5 years and not once have I needed to get a scan afterwards.
Three hours after I came back from the getting the dilation I still hadn't had the scan and nobody had told me what was going on, finally after four hours at just after 8pm two doctor's form the GI ward eventually told me what was going on. During the procedure the consultant radiologist thought that the oesophagus had torn during the dilation due to him over stretching it. Being told this made me panic even more and honestly I was really scared, I always knew that this was one of the risks of having a dilation but it is one of this things that will happen to you especially when you have had dialtions so many times before and nothing like this has ever gone wrong.
Due to it being so late in the evening I was told that I wouldn't be getting the scan today, it would have to be done the following morning and because of the complication they thought I had I was nil by mouth until they did the scan. Of course being nil by mouth meant that I couldn't take my anti anxiety medication so they had to give me half the standard dose of lorazepam, thankfully this medication helped calm me so fingers crossed I will be able to sleep.
Thursday 10th April 2014
Today has been an extremely stressful, crappy day and I am so glad that it is finally over.
Despite all the stress I was under I did manage to get some sleep thanks to the lorazepam that they gave. I had to woken up multiple times during that night to get my blood pressure, temperature and oxygen levels checked because they were keeping a very close eye on me.
So when GI doctors came and did their ward round in the morning the consultant felt that there wasn't a oesophageal perforation because I was so well and didn't have any more pain then I normally do. The GI doctor would have been more then happy to let me go home but because he didn't do the dilation and the consultant radiologist did he was going to do what the radiologist had advised.
As the hours went past nobody was coming to take me for the scan. In the late afternoon the nurse in charge asked if I had been for my scan and I said no, she said that she would find out what was going on but the nurse never came back. Finally at roughly 7pm a doctor came to explain why I had not got my scan, apparently somebody in the radiology department took the request for the scan off the computer system and because the request was not on the computer when the GI doctors looked at it they just presumed it had been done.
This was the finally straw for me I couldn't handle anymore so I broke down and cried, I just want this nightmare to end.
Friday 11th April 2014
Today the nightmare finally ended and I got discharged from hospital.
This morning the GI doctor's came round to do to there normal morning ward round and it was positive news, as it had been 36 hours since I had the dilation and I hadn't displayed any signs of surgical emphysema they said that they weren't going to bother with scan and I could start eating and drinking. I had some porridge and water for breakfast and they both went down okay so I was allowed to go home in the afternoon.
It is so nice to be out of there and I can't wait sleep in my own bed tonight. I would be lying though if I said I wasn't anxious about going home especially since they didn't do the scan to find out what was going on in my oesophagus but I feel okay and I am not in that much pain so I am sure everything is fine.
That's it for today's post, if you would like to see my diary entries as soon as I post them then follow my Crohn's Quine diary. Until next time remember....
Despite all the stress I was under I did manage to get some sleep thanks to the lorazepam that they gave. I had to woken up multiple times during that night to get my blood pressure, temperature and oxygen levels checked because they were keeping a very close eye on me.
So when GI doctors came and did their ward round in the morning the consultant felt that there wasn't a oesophageal perforation because I was so well and didn't have any more pain then I normally do. The GI doctor would have been more then happy to let me go home but because he didn't do the dilation and the consultant radiologist did he was going to do what the radiologist had advised.
As the hours went past nobody was coming to take me for the scan. In the late afternoon the nurse in charge asked if I had been for my scan and I said no, she said that she would find out what was going on but the nurse never came back. Finally at roughly 7pm a doctor came to explain why I had not got my scan, apparently somebody in the radiology department took the request for the scan off the computer system and because the request was not on the computer when the GI doctors looked at it they just presumed it had been done.
This was the finally straw for me I couldn't handle anymore so I broke down and cried, I just want this nightmare to end.
Friday 11th April 2014
Today the nightmare finally ended and I got discharged from hospital.
This morning the GI doctor's came round to do to there normal morning ward round and it was positive news, as it had been 36 hours since I had the dilation and I hadn't displayed any signs of surgical emphysema they said that they weren't going to bother with scan and I could start eating and drinking. I had some porridge and water for breakfast and they both went down okay so I was allowed to go home in the afternoon.
It is so nice to be out of there and I can't wait sleep in my own bed tonight. I would be lying though if I said I wasn't anxious about going home especially since they didn't do the scan to find out what was going on in my oesophagus but I feel okay and I am not in that much pain so I am sure everything is fine.
That's it for today's post, if you would like to see my diary entries as soon as I post them then follow my Crohn's Quine diary. Until next time remember....
Keep Strong, Keep Fighting
xxxx
Follow me on:
Comments
Post a Comment